My Haley has Fanconi…........

  • First Basenji's

    @tanza:

    You also should have a full thyroid panel done, not just the part that is done with regular blood work. Many times Fanconi affected dogs have very low thyroid which can effect them in a number of different ways with hair coat, things like hives, mood, temperament, eating (or not eating), weight gain or loss… Here is a link about thyroid testing. You should tell your Vet you want the full panel done. Also Dr. Dodds is another one that is happy to talk to people about thyriod problems, test results (even if they are not done through her), and treatment.
    http://www.hemopet.org/services.html

    OK…..I will. Thank you, Pat!

  • First Basenji's

    Haley's urine culture came back and it shows e-coli, for heavens sake! So, we're keeping her on the low protien diet that gives her kidneys a break and adding an antibiotic to the daily regimine for the next couple of weeks.

    The twice daily pilling is going pretty good at this point (probably shouldn't have said THAT out loud!!!!) and her appetite seems to be getting a bit better.

    She still doesn't know she's sick and continues to antagonize Prince (the BRAT rescue)!


  • @SyberSade:

    Haley's urine culture came back and it shows e-coli, for heavens sake! So, we're keeping her on the low protien diet that gives her kidneys a break and adding an antibiotic to the daily regimine for the next couple of weeks.

    The twice daily pilling is going pretty good at this point (probably shouldn't have said THAT out loud!!!!) and her appetite seems to be getting a bit better.

    She still doesn't know she's sick and continues to antagonize Prince (the BRAT rescue)!

    That is great, keep up the good work….. and I am sure she will feel loads better with the antibiotic

  • Houston

    Good to hear that she is doing better..keeping my fingers crossed she will take to the protocol with huge leaps..

    is that Prince form TX?..if so he is beautiful…


  • Syber-

    Did you decide to go with a raw diet? Was just wondering what you decided to feed Haylie. I was also going to say that I'd be hesitant to start a dog on raw if she had some health problems or a compromised immune system. However, I will say that I do not feed raw to my dogs, so I may be biased. I do know many people who feed raw and their dogs do great on it. I think in Haylie's case, if you want to try raw, I'd start with cooked and get her healthy first.

    I feed my dogs Evo or Evo/Canidae, but would NOT NOT NOT suggest Evo for a dog with Haylie's health problems.

    Anyway, sounds like she's on the upswing and that's great news.

  • First Basenji's

    @Basenjimamma:

    Good to hear that she is doing better..keeping my fingers crossed she will take to the protocol with huge leaps..

    is that Prince form TX?..if so he is beautiful…

    Yep! The Texas Prince! He's famous! He's also as sweet as he is handsome! ;)

  • First Basenji's

    @agilebasenji:

    Syber-

    Did you decide to go with a raw diet? Was just wondering what you decided to feed Haylie. I was also going to say that I'd be hesitant to start a dog on raw if she had some health problems or a compromised immune system. However, I will say that I do not feed raw to my dogs, so I may be biased. I do know many people who feed raw and their dogs do great on it. I think in Haylie's case, if you want to try raw, I'd start with cooked and get her healthy first.

    I feed my dogs Evo or Evo/Canidae, but would NOT NOT NOT suggest Evo for a dog with Haylie's health problems.

    Anyway, sounds like she's on the upswing and that's great news.

    I'd started researching the raw diet thing just before all this Fanconi stuff hit….....I'd fed the kidz one or two meals raw when we got the diagnosis. So, I stopped the raw thing and Haley went on a Rx renal food.....but, I stopped feeding the Rx food a couple days into the Fanconi Protocol because her skin got VERY pink! The vet thought she may be allergic to the Rx food, but I think she was getting WAY too much of one or more vitamins because the food has a lot in it and so does the protocol..............so, now I cook healthy whole foods for both of the kidz with a little high-end kibble mixed in. I got some sample packs of dry food from a local store called "Bark Avenue". Both dogs seem to be loving the new meals. I've been feeding them a small a.m. meal and a larger p.m. meal. I went to two meals a day so that Haley would have food in her tummy when I give her the twice a day tons of pills. Couldn't NOT feed Prince if I was feeding Haley, so he gets a little breakfast, too! He's overweight.....she's underweight.......good grief! It's going to take me awhile to figure all this out!


  • Glad to hear Haleys doing ok, thanks for the update


  • Sadie,

    Join the fanconi group that Pat recommended. It is amazing! They support you from beginning to the end. My experience with the group has been benefical for both me and my basenji. Keep us posted and hugs to Haley

  • First Basenji's

    Hello everyone out there in Basenji Forum Land!

    Thank you all so much for all of your advice. I have joined the Yahoo Fanconi group and have already learned from reading some of the posts….....AND I have contacted Dr. Gonto and had all of my questions answered. He's actually a pretty funny guy! I've really enjoyed my email conversations with him! He corrected me on the amount of bicarbonates and vitamins I was giving Haley and also suggested the cranberry tablets as one of you suggested. Actually, had I not been corrected by Dr. Gonto, I would have harmed her by continuing the toxic level of vitamins I was giving her!!!!!!!!!!!!!!!!!!! I'm not kidding!!!!!!!!!! So, thank you all for encouraging me to contact him! :eek:

    Haley has now been on the protocol and antibiotics for 3 weeks. The first change I noticed was her fur. Her coat is so much softer now! Then just yesterday I noticed that she's finally starting to have a much bigger appetite. I've never known her to be a big eater.....but, then I've probably never known her when she's not been showing signs of Fanconi (since I think she's gone undiagnosed or misdiagnosed for at least 2 years). She seems to be playing with her toys more and acting younger, too. She's also been antagonizing Prince (the new BRAT rescue) a lot..........which is a good thing - unless you're Prince!! :D

    We went through a rough patch with all the pilling, but I think we've worked out the bugs. I'm using some of the suggestions I've gotten on this forum and the Yahoo Fanconi Group. What a great support system Haley and I have!

    Merry Christmas and Happy Holidays to you and yours!! :)

  • Houston

    Sadie..
    I am so glad to hear an update on Haley, I was thinking of her the other day(I guess I should've asked, but you beat me to it..). Sounds like things are going very well..keep us posted..


  • Thank you for update on Haley best news of the day. Sounds like all is great and doing better every day. Thank you for caring and reading looking until you found what would help Haley and for not giving up your super. Merry Christmas and Best for Happy New Year.

    Rita Jean


  • That is great to hear….. and you would want to see if your Vet would get in contact with Dr. Gonto, so that he/she understands how the protocol works.

  • First Basenji's

    @tanza:

    That is great to hear….. and you would want to see if your Vet would get in contact with Dr. Gonto, so that he/she understands how the protocol works.

    True! Thanks for the reminder, Pat. I hadn't thought about it! :o


  • Thanks for the update Sadie, i'm glad things are going well for Sadie


  • hi there sorry to hear this but , im going through the same thing right now but my boy hasnt started showing signs yet but he tested carrier/affected, but DR.GONTO WILL TAKE THE TIME TO TALK TO YOU AND THE VETS HE IS A REAL HERO ! I HAVE TALKED TO HIM A FEW TIMES. I'M GOING TO BE EMAILING HIM THIS WEEK WITH MY BOYS VEROUS BLOOD GASSES WORK RESAULTS TO SEE WHAT NEEDS TO BE DONE ON HIS FOOD OR MEDICATIONS IF ANY YET!!. AS IM KEEPING MY FINGURS CROSSED! MY BOY'S 3 NOW AND I GOT HIM TEST THANKS TO TANZA AND IVOSS THERE THE ONES THAT HAVE HELPED ME OUT OH, WAIT SHARRONHULSBUT TOO!. THERE GREAT TO TALK TOO AND GET ADVISE FROM. AGAIN SORRY TO HEAR ABOUT YOUR BABY BASENJI, AND GOOD LUCK WITH EVERYTHING.!

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    I am sorry to hear of your dog's possible Fanconi Affected status. I agree completely with Terry about waiting on the thyroid panel until he is stabilized on the protocol… and making sure if he does have a UTI, getting that under control as well. When you join the Fanconi list, be prepared that you will get tons of information, some of it conflicting. You will need to sort out what is best for your dog and you and his health. Do the protocol and hope for the best. Some dogs do very very well on it. Some do NOT tolerate it at all. I have two littermate boys with Fanconi, the one on the protocol was sick from day 1 and his body hated the protocol. His brother was sick on it, so we came to the conclusion that a better diet could make him feel better... and it did. He lived 4 years after diagnosis whereas the one sick on the protocol lasted about 2 years. Each dog is different. I lost my old Benny to Fanconi last fall and it was the most devastating thing I have been through in my life... I have helped my dog owners with their affected dogs and will continue to do so with the last few that have Fanconi Syndrome. If you ever want to ask me some questions, feel free to PM or email me and I'll get back to you as soon as I can. Belly rubs to the boy for me and one from Benny's kindred spirit.
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