I hope this works out for you… and the dogs. It's such a kind, generous idea and a lovely tribute to your grandmother!
FAQ's for the new Fanconi linkage test
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I'm alittle confused..please bear with me. Since I don't know where Lillie came from (adopted from a shelter) and she is now approx. 1 1/2 years old, should she be tested now. Also, is this something my vet can do or is it only available thru canine phenome? Sorry if these questions have already been asked but I don't want to wait if it's important to test Lillie now. Thanks for the help.
Jodie:)Your Vet can not do this test as it is a DNA test. However any Basenji can be tested… you can do it now with the linkage test or wait till next year when the direct DNA test will be out. Since she is only 1 1/2 and since normally Fanconi starts at 3yrs or later, there is nothing wrong with waiting for the direct test... if you don't want to wait you can have it done now. Your Vet needs to send the blood to U of Mo since that is were the DNA test is being done. You must enter your dog on the CPP site (and they do not need a registration number either, there are many that are rescues, etc that are on there and being tested). You can find the details of the test at www.basenjihealth.org and you will find the CPP site links. Once you enter her on the CPP site and note that there is no DNA on file for her, you will get the form that you need to have with the information for the blood drawl, how much and where to send it.
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Pat-Thanks for the info. I entered Lillie's info on the CPP site. I will probably wait until next year for the direct DNA test. Do you think most vets know about Fanconi? Just curious. Thanks again for clearing this up.
Jodie:)
PS HAPPY BIRTHDAY OJ! -
Pat-Thanks for the info. I entered Lillie's info on the CPP site. I will probably wait until next year for the direct DNA test. Do you think most vets know about Fanconi? Just curious. Thanks again for clearing this up.
Jodie:)
PS HAPPY BIRTHDAY OJ!I would say it is about 60/40 that Vet know about Fanconi… which is why always a good idea to take the information with you (print out of the protocol) and give it to them for your dogs file.
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That is exactly what I will do! Thanks.
Jodie:) -
Bryan is picking up the blood this week and it will be sent in. I have my fingers crossed, believe me. In the meantime, I'm going to start studying as much as I can now so that if things don't go the way I hope, I'll be ready to jump on this as soon as it shows up.
Have you heard anything about Jazzy's test?
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Have you heard anything about Jazzy's test?
No. It's been less than a week. How long does it typically take to get results?
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I heard it takes up to 14 days.
I am about to submit Chance's blood work this week.
It's great that we have this test now. I know its still new but its better than nothing.
I think everyone like me is nervious about getting the results. I can't stop thinking about it. -
I'm pretty sure I know Jazzy's results – with a diagnosed mom and a carrier dad, it is not going to be fantastic news.
Keoki, I have hope for..... His mom's a carrier {Jazzy's grandma}, but his dad is clear.
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I'm pretty sure I know Jazzy's results – with a diagnosed mom and a carrier dad, it is not going to be fantastic news.
Keoki, I have hope for..... His mom's a carrier {Jazzy's grandma}, but his dad is clear.
Well, she would still have a 50/50 shot at being a carrier…so it might be fine!
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That's what I'm hoping for.
And that Keoki will test clear, not carrier.
This waiting is such a pins-and-needles thing. I hate it. Whatever the results, I just want to know!!
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How come? It doesn't bother me one bit if mine are carriers, if it is an animal for breeding, I will just find a clear to breed him or her to; and if not for breeding, doesn't really matter as he or she will live without any symptoms. -
He may be used for breeding, and it just seems like it'd be easier {more options for breeding} if he's clear.
No concerns for his own health.
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He may be used for breeding, and it just seems like it'd be easier {more options for breeding} if he's clear.
No concerns for his own health.
Yes, true more options for sure…..for some reason I thought he was placed as a pet.....but he sure is a nice boy, I can see why if Brian changed his mind about showing/breeding him.
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He may be used for breeding, and it just seems like it'd be easier {more options for breeding} if he's clear.
No concerns for his own health.
Well, there are lots of clears that he could be used on…. so should not be a problem... good news is that he will not be affected
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good news is that he will not be affected
Oh, absolutely! And I am sooo thankful for that!:D
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To Jazzy's Mom,
I know you're worried about Jazzy's results. I also know you're a great b Mom! I won't lie and say it isn't hard to have a Fanconi afflicted dog - it is. It's the first thing I think about when I get up in the morning, and usually the last thing on my mind when I go to bed at night. I worry about Storm's meds and next round of blood gas/ full blood panel tests and how he's responding to the Protocol.
But honestly, I think his disease has more of an impact on me than on him. He's his typical self - cat pouncing, squirrel chasing fiend. If you didn't know he had Fanconi, you couldn't tell by his actions or how he looks. He's a typical 'senji devil.
It's the emotional "Mom stuff" that's hard - but you do it, it becomes a part of your routine, and before you know it, it's old hat counting out the pills, wrapping them in some doggie delight so they're easily adminstered. The worry never stops though - are you doing everything in your power to make sure they're staying well, is their quality of life good, etc. It's an emotional drain (esp. at first and that's where having great friends helps tremendously!!!) and it's so overwhelming at first.
I feel confident that IF Jazzy's results come back as afflicted, you're going to be a great Fanconi B. Mom! Hang in there and know my fingers are crossed that both your babies come back A-OK!Lorraine and Stormie Dog
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Great Post Lorraine… One thing that I will say however, from the B's that I know with Fanconi, one of the biggest things to watch out for is a UTI. This can really reek havic on the protocol... I think that it is worth when you have blood gases done (which is every 6 months if I remember correctly) have a urine test done too.... of course, JMO...
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Sigh.
I already have two human children w/Type I Diabetes, so being constantly worried about "Did I remember that….." "Did I handle that right..." is sort of my way of life. I suppose tossing a dog in the mix will be handle-able, I'll just have THREE medical regimens to micro-manage instead of two. bleh.
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Pat - yes, UTI's are huge worry. Fanconi dogs tend to wall off infections, so even urine samples aren't always accurate. You learn to treat UTI's by symptoms (and hopefully your vet will understand this!!) - symptoms typically run anywhere from lethargy, to vomiting, to lack of appetite. I have, thus far, been very lucky in the regards that I haven't had to dole out antibiotics on top of bicarbs etc.
Feeding a food w/ probiotics in it and a bit of yogurt and a cranberry pill a day also helps. Most Fanconi owners I've run across use these methods to help ensure a healthy urinary tract. -
Glad that you pointed that out and yes, sometimes UTI's are really hard to catch… so you are right, learning the symptoms for your dog is the key....
